WVP Family Website Privacy Notice


This Well Visit Planner (WVP) website was developed and is maintained by the Center for the Advancement of Innovative Health Practices doing business as the Child and Adolescent Health Measurement Initiative (CAHMI). This Privacy Notice describes the information we process to support the Well Visit Planner.

The purpose of the tool, the Well Visit Planner (WVP), is to empower and engage parents/caregivers and families (“you”) to become partners in their child’s healthcare. The WVP allows parents/caregivers and families to explore key issues and needs important to the health of their child and family; learn about important topics to discuss with their healthcare provider; pick top priorities and receive educational information before, during and after visits; and partner with their child’s provider by sharing a personalized, family Well Visit Guide (WVG) and/or provider Clinical Summary (CS) before or during the visit. The WVP is based on the most recent, national AAP Bright Futures Guidelines and recommendations and is made for parents/caregivers of children who are between 4 months and 6 years old.

CAHMI is governed by the Health Insurance Portability and Accountability Act (HIPAA) (42 U.S.C. §1301 et seq.). Such use of you and your child’s personal information shall be protected in compliance with HIPAA.

How information is used, protected, and secured

CAHMI takes the responsibility of ethical data stewardship seriously. We are committed to giving you control and genuine choice about how your data is used. We strive to be transparent about our data usage and provide you with the information you need to make informed choices.

The WVP collects and may save information, depending on your agreement and the customized WVP tool that you are using. By using the customized WVP Family Website shared with you by your child’s provider, you are agreeing to share your Well Visit Guide (WVG), Clinical Summary (CS) and WVP responses with your provider. You may also be given choices to share your WVG/CS with your provider through your own personal email, through your patient portal, or by saving and/or printing your WVG/CS and bringing it with you to your visit.

We do not save any personal health information that is collected through our websites and tools. You may have the option to provide a few pieces of identifiable information to allow you and your provider to search/locate your child’s Well Visit Guide and/or Clinical Summary in your provider’s dashboard. Those pieces of information are:

  • date caregiver/parent completed the WVP on your WVP Family Website
  • child’s name/nickname or first, middle (optional) and last initials,
  • month and year of child’s birth (not the day), and
  • a special keyword selected by the caregiver/parent (like a favorite animal, food, toy or color).
  • All sensitive or identifying information is encrypted on CAHMI’s HIPAA compliant server. Even if this information were accessed, it is unlikely it could be used by anyone other than the provider and caregiver/parent to identify the child. For additional information on data security of information collected on any Well Visit Planner Family Website, please contact the CAHMI at info@cahmi.org

    Use for Personal Data

    Data collected through this online tool is confidential. We do not share your personal information with any other parties unless you give express consent and agree for us to do so. We only use your personal data for specific purposes, as outlined below:

    User Experience: We are dedicated to optimizing your data for your experience and use. We use information you share to provide resources, offer customizations, and improve your experience with the WVP.

    Tool Support and Improvement: We use your data to drive improvements, resulting in better performance and enhancements. When you choose to share feedback with the CAHMI on the WVP, we use your data to understand what users want and guide our development efforts. This allows us to detect usage trends and gain real-world feedback on what features and services our users need.

    Child Health Care and Outcomes Improvement: The WVP stores identified and deidentified information related to child health and quality of health care services. Given the identifiers that are stored, CAHMI is unlikely to be able to personally identify any users of the WVP. CAHMI reserves the right to use deidentified data for research purposes.

    Clinicians, health care providers, health systems and other organizations that have an account with the COE and have enabled use of the WVP Family Website to save their families’ Well Visit Guides can view completed WVGs and Clinical Summaries. They can also request summary reports of the deidentified, aggregate data and/or population-based data collected from the WVP.

    Data Minimization and Retention:

    We will keep personal data for no longer than is necessary for the purposes for which it was collected and then we will securely delete or destroy it.

    Data Security

    We implement information security best practices and controls to keep your personal information safe. Both security and privacy are embedded throughout our design and developmental processes. To protect your personal information and data, we implement a variety of security measures including: use of secure server, information storage on secure dedicated port-protected database that only allows data entry from the tool to our database, database with closed-off port for the SQL Server installation. And we follow the principle of least privilege access to ensure that your personal data can only be accessed on a need-to-know basis. Only authorized personnel with special access rights to our systems are given access to the data.

    How to contact CAHMI with any questions

    If you have any questions about CAHMI, the Cycle of Engagement, Well Visit Planner, Online Promoting Healthy Development Survey or any other tools and features, you can contact us online at info@cahmi.org.